Showing posts with label DNA privacy. Show all posts
Showing posts with label DNA privacy. Show all posts

26 March 2025

23ANDME DNA TESTS and WARNING ABOUT PRIVACY : DELETE YOUR INFORMATION NOW

CLICK ON THE LABEL 23andme to bring up previous posts that include this topic.

23andMe has gone bankrupt and your personal privacy and that of your children - relatives - is at risk. This could effect 15 million people. Since the company is up for sale, it's reasonable to think that your DNA is what would make it interesting to a buyer...

NPR ORG : HOW TO DELETE YOUR 23ANDME GENETIC INFORMATION
Steps to delete are at the link above.

Excerpt: Bonta also provided this advice for destroying your test sample and revoking permission for genetic data to be used for research :

If you previously opted to have your saliva sample and DNA stored by 23andMe, but want to change that preference, you can do so from your account settings page, under "Preferences."

If you previously consented to 23andMe and third-party researchers to use your genetic data and sample for research, you may withdraw consent from the account settings page, under "Research and Product Consents."

18 January 2023

A DISCUSSION ABOUT DNA PRIVACY (THERE ARE MANY WAYS TO BE FAMILY)


The arrest of the man alleged to have murdered the four Idaho college students is said to have been achieved through, among other things, DNA testing. I would love to know which DNA testing databases sold for GENEALOGY purposes were used to identify his DNA at the crime scene. Although we like the fact that DNA can free someone who is not guilty but sentenced and imprisoned, or because of arrest and imprisonment, not commit a crime again, this is a discussion we need to have.

I'm often asked if I have done DNA genealogy for myself and family.  The answer is no.  I'm satisfied with what genealogy research tells me at this point.  

Thinking about the reveals that various people have told me (not a huge poll, I realize) when they hear I'm a genealogist, I would say about half have had some mind-challenging result, from discovering one was adopted and not actually blood-line wise, Native American, to that grandma had an affair and the family genetically belongs to a different Scottish clan.

Let's pause a moment and think about WHAT CREATES A FAMILY.  And for some of us it's about CHOICE.  There are many people who have not or will not marry and have children, and these people in the past were often not included on genealogy charts because - well - they had not reproduced.

Also for me, I knew that my family was ethnically mixed while still in Europe and if you find that your family came from the noble or aristocratic class back in the day the chances are greater that your ancestors traveled far for marriages.  

We must also look at the fact that countries and borders that are in place now, were not always.  People identified themselves as belonging to an ethic group or a locality group and there were disputes.  An area that is mostly Germany but with a high population of French.  An area that is now in Romania where most people are Hungarian.  An area that was once Hungary is now Slovakia.  A small portion of Poland that was Hungary.  And so on.  

I realize that when you're hooked on genealogy, you really don't want to quit and DNA may have some answers for you...  I understand, totally, for I too have hit the end of the road on many of my lines.  But in the end, it probably does not matter.

Perhaps one of the reasons I feel this way is that, although I don't know how it works, I am partial to the recycling of souls called "reincarnation."  Perhaps we have the experience of many cultures over time.  I'm also interested in "genetic memory" and the idea that we retain something of our parents and grandparents life experience.

These are my thoughts as we head into 2023...

If this is your first stop to ANCESTRY WORSHIP, welcome!

C 2023 Ancestry Worship - Genealogy BlogSpot

23 April 2021

BLACKSTONE BOUGHT ANCESTRY FOR NEAR FIVE BILLION DOLLARS : HOW PRIVATE IS YOUR DNA ?

LATIMES WHAT MIGHT Blackstone DO WITH ANCESTY'S DNA DATA 

The PAPER version of this article which appeared in the LA Times on April 13, 20121 by David Lazarus was called  "What Might Blackstone Do With Ancestry's DNA Data?"  On line, where it is showing up in Spanish, it is called  "Why Would A Company Invest Millions To Buy Ancestry, If It Is Not Interested In The DNA Data Of Its Users?"

Excerpt: He and other bioethicists were quick to note that existing federal medical privacu laws do not apply to genealogy sites.  These companies are basically free to do whatever they want with people's genetic data.

"A lot of these sites are bait and hoax," Caplan said.  "They offer interesting content, but what they're really looking for is your DNA."

So take the industry's genetic privacy guarantees with a grain of salt.  These companies operate largely in the shadows and their activities are limited almost exclusively by an honor system."

***

But nearly every expert spoke with cited  the partnership  announced in 2018 between Ancestry rival 23andme and pharmaceutical giant GlaxoSmithKline.

***

This is a very important article and if you have allowed your DNA to be submitted to ANY genealogy site, I agree with the journalist who wrote the article.  You have no protection and no company spends billions for data they are not going to use.


REMEMBER THAT GENEALOGY DOES NOT DEPEND ON YOUR DNA. Genealogy depends on DOCUMENTS.

27 March 2021

BEWARE BAIT AND SWITCH GENEALOGY: ADOPTION #5

I was recently asked for an opinion about a "free" adoption search offering by a large company on the Internet that provides databases at no charge, though they want to be credited for information they copied from original sources and own your research that you submit to them too.

What's free?

Listen. I'm offering information free here hoping my readers will "scouts honor" respect my copyright and keep to pro standards as hobbyists. I mean to be helpful. I'm not rich and I know my work has value. It could be argued that I can't afford to not charge. In some cases, maybe Karma is pay.

I've done free professional genealogy. I knew why.

I knew one person to be a senior living in poverty and it was an adoption search based on information her sister had. 

I worked free early on when I wanted to test myself in an area of genealogy I didn't have experience in.

I can't say that this blog or anything else I've given or gave willing turned into paying clients yet I'm not entirely skeptical about what's free. Just to clarify, these days I find myself frustrated with the unprofessional undocumented, speculative, and family rumor stuff posted on various databases (and the way it's copied into others) where there is no human supervision or accountability. 

I let one person know they'd posted information erroneously, that Is been checking for documents every six months for years, and this person never contacted me and -this is scary- auto reported me as abusive. In recent months the potential source for his rumor became available in another country. I've read page by page hundreds of pages related to the church, town, villages, etc. and there is absolutely no documentation and his chart is still wrong.

Increasingly looking at other peoples' so called research work in databases and on the net is time wasting. Time is money. It's better for me not to look at other peoples' work and just start the research looking for documents and do charts of my own knowing I can trust myself.

And I'm under no obligation to submit my work to any site. Neither are you.

But this post is about BUYER BEWARE.

I have a friend that was ripped off by a genealogist in Ireland. He had her related to founding fathers. Wonder how many people he told that to? She found out when she went to Ireland with the chart and learned no such family existed. She went to the church, the archive. A priest told her the chart was impossible due to long lost documents.

Thousands of dollars spent.

She also paid an American to find a branch of her family in upstate New York. He reported finding no connection. (I've since reviewed his work and more about that later.)

Both the Irish genealogist and this American were either fakes or incompetent. This year she found the connection herself in New York.

How many ancestors have found themselves in the afterlife wondering why they've been called into a Baptism for the Dead since they know who they're related to and it's not to you? They must be so confused! (Along with Anne Frank and several others who were being given - spiritually - the option to give up being Jewish!)

You're better off working with a pro you can meet with than a volunteer you'll never meet in person.  (At least on Zoom!) Why? Because while professional standards genealogists are no more psychotherapists than hairdressers are, we are told secrets and are keepers of them. On an adoption search I think you need the wisdom and empathy that comes from dealing with individuals and families who want to know about their heritage - good or bad - the truth.

Sometimes the pro thing to do is admit you cannot go further and that's a difficult thing to do, however, my primary concern re bait and switch is that free adoption searches might lead to being told to sign up for DNA testing that costs money. What private DNA test results become owned by a company and when? Will they sell that information?

Also, will your privacy be invaded when information gleaned from you and their search is placed in a database and even becomes the intellectual property of that company? I suspect freely given information will one day be sold for profit. Why not? Volunteers have done so much free labor, especially database entry, that has been sold for profit.

You see, a volunteer can't do anything more than the adoptee can so I suspect they'll suggest DNA testing. You (or a lawyer you hired) are the only person who can plea you have rights or sign papers asking for the release of information. Now, a pro can guide you to do those things and maybe a volunteer can too but ask yourself and then question them about the use of that information. Read the fine print. This is your personal business. Your family's personal business.)

You can sign up for adoption registries and DNA tests without a genealogist, paid or volunteer. 

The time to take a DNA test might be after you've met someone through a registry or been given possible results by a genealogist. Then a DNA test showing you're related is an affirmation.

Ask if the information you give or are given remains FYI or if it will be entered into a database or Internet site for anyone on earth to see. I personally think that, if so, it opens you and your children to Invasion of Privacy including possibly medical privacy in the future.

Ask yourself why it's important to know who gave birth to you. If the parents who adopted you were loving and good people, maybe it's enough. 

Hey, maybe you're rich and looking for an heir?

THE MAIN REASON I'M SUSPICIOUS OF THESE FREE ADOPTION SEARCHES IS THAT THE BAIT and SWITCH (when they can't do it) IS TO SELL YOU A DNA TEST and you can be those results may not be forever private.

C 2021 Ancestry Worship Genealogy

Adoption Strategies - AWG